We were in the hospital last week. I was holding Ansley while she napped (story for another day) and she stopped breathing for a few seconds. Was EXTREMEMLY scary! Went to hospital and she ended up have a seizure (not spasm) so they are thinking the pause in breathing was a seizure manifesting. We knew it was a possibility that her spasms could turn into seizures. We started her on an anticonvulsant and are continuing to wein her off steroids.
Ansley's feeding issues have resurfaced as we started weening her off steroids. We just saw an ENT today and scheduled a modified barium swallow test for December. She looked in Ansley's nose/throat (with camera) and discussed that Ansley's reflux is pretty bad even on Zantac. So referring her to GI for reflux issues and to discuss feeding issues. Ansley currently is averaging 15-18 ounces a day, we need her around 28. It's so stressful to try and get her ounces up. Momma and Daddy want her to grow and thrive!
On to the good stuff, Ansley has rolled over (front to back) a few times! It's so so sweet to see!!!! She also brought her hand to her mouth twice last night! GREAT improvements! She's also opening her eyes so much more. Which is a great first step to vision! She's currently in vision therapy weekly and start occupational soon.
Thank you for all the sweet prayers and concerns!
If you would like to help, we have a paypal benkatierice@gmail.com or http://www.gofundme.com/f3a2n0
