Thank you all for the LOVE and SUPPORT on the GoShoutLove Campaign!! Holy Moly!!! In 8 days, they sold 250 shirts (Halfway to their goal of 500)!!!! You all AMAZE us!!! We feel so loved and BLESSED! Thank you so so much. If you would like more info on GoShoutLove(Order shirts, participate in auction or read stories of other amazing families), visit www.GoShoutLove.com. They are a fabulous Organization and feature a sweet family every single month to help raise funds and spread awareness about the disease or diagnoses the sweet little kiddos face.
If you are following our story on IG (GetFitKatie) or FB(www.facebook.com/AnsleyisFancy), you have seen that last week we added a diagnosis of Cerebral Palsy to Ansley's"list". While it doesn't add anything "new" for her it does help us know a little (teeny) bit more about her prognosis. Helps us see that she most definitely will have challenges, both neurologically and developmentally. BUT GOD. It's amazing to see how FAR she has come in the almost 7 months that we've had our sweet Ansley Claire. When we first were placed with her, she was "stiff as a board" and so so skinny. We didn't see it then. All we saw was our sweet baby girl finally home with us. But to see her "loosen" gain mobility, gain weight, become healthy, feel loved, feel secure, it just brings the biggest smile to our faces. We couldn't be more proud of her. She is a FIGHTER. She has overcome so much already of what people told us she wouldn't be able to. We do believe she will do great things with her life, in her OWN time. BUT GOD. I tell myself that ALL the time. Whenever we feel down, worried, sad that reminder pops up BUT GOD. Thank you God for allowing us to come to you for ALL things, big and small. Thank you for loving us enough to send us this precious girl.
Here's a "snipet" of Ansley's diagnosis for new followers:
Lissencephaly - which literally means smooth brain, is a rare brain formation disorder caused by defective neuronal migration during the 12th to 24th weeks of gestation resulting in a lack of development of brain folds and grooves. The prognosis for children with lissencephaly varies depending on the malformation. Many individuals remain in a 3-5 month developmental level, while others may appear to have near normal intelligence and development.
Microcephaly -a rare neurological condition in which an infant's head is significantly smaller than the heads of other children of the same age and sex. Sometimes detected at birth, microcephaly usually is the result of the brain developing abnormally in the womb or not growing as it should after birth.
Poly Micro Gyria -Polymicrogyria is a condition characterized by abnormal development of the brain before birth. The surface of the brain normally has many ridges or folds, . In people with polymicrogyria, the brain develops too many folds, and the folds are unusually small. The name of this condition literally means too many (poly-) small (micro-) folds (-gyria) in the surface of the brain. ****Ansley has the PMG small folds under the smooth layers of her brain. Little Diva has to have a mixture of both, which is very rare.***
Cerebral Palsy - Cerebral palsy is a disorder of movement, muscle tone or posture that is caused by an insult to the immature, developing brain, most often before birth.
Cortical Vision Impairment - is a form of visual impairmentthat is caused by a brain problem rather than an eye problem
Optic Nerve Hypoplasia - Optic Nerve Hypoplasia (ONH) is the under-development or absence of the optic nerve combined with possible brain and endocrine abnormalities.
ADOPTION UPDATE: BirthDad TPR is set for next week so hopefully finalization will be in MARCH!!!! Please continue to pray.
Thank you so much for loving our sweet Ansley Claire. She is a GEM and sparkles every single day.
SPARKLE ON!!!!!!
For those wanting to donate, we would love for you to be a part of the GoShoutLove Campaign, or have a GoFundMeAccount at: http://www.gofundme.com/f3a2n0
